root@Medical ethics and cybernetics
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Does anyone have a pointer for this? I find myself puzzling over an ethical conundrum on the subject of body modification and cybernetics research.—
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Does anyone have a pointer for this? I find myself puzzling over an ethical conundrum on the subject of body modification and cybernetics research.@-rep +1
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root@Medical ethics and cybernetics
[hr] Cybernetic implants are not something that exist yet, and one of the barriers to creating them is IRB limitations on human subject research. First and foremost, surgical alteration of a human being away from human norm is illegal (at least in the US), regardless of the subjects desires concerning the alteration. Because of this, subjects volunteering for cybernetics research, even if they give informed consent, may not be a legal or ethical population to study. Since cybernetic implants require elective surgery, the medical ethics involved must be addressed, and the ethics decided upon must be defensible to an IRB, and to a courtroom. From my use of italics, you might get the point that fucking around the edges of medical ethics in this field is a really bad idea, and can carry some harsh jail sentences. In addition to the amount of trouble the researcher can get into, the research institute that allowed them do this research can get shut down, permanently. The ethical question I want to address is the use of extreme body modification enthusiasts as research subjects. There are people out there that are willing to perform some very heavy modifications to themselves, and because of the legal structure surrounding elective surgeries modifying someone away from human norm, the body modifier often end up using a shady surgeon, but only if they are lucky. If they aren't lucky, they will either do it themselves, or have a "cutter" try to perform the operation. These surgeries can be extremely dangerous in regards to infection and blood loss, which is made much more likely given the general lack of sterilization used by anyone without access to a surgical ward. As there is precisely zero sympathy for body modification in the US courts, there is no chance that a trained doctor will be involved unless there is some very strong external reason for them to be. Given that this population will perform their surgeries (up to and including amputating limbs) regardless of access to medical facilities, is it ethical to use them as a research population for cybernetic implants given that their health risks drop dramatically when they are receiving proper medical care? I really don't have an answer for that, so I'm hoping someone here has some idea of what area of medical ethics I should be looking in to. Basically, I'm interested in cybernetics research, but I'm not even sure what subject population canexists. This may be something that medical ethics and laws simply forbid.@-rep +1
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[hr] Neural prosthesis are not illegal in the US, and cybernetics don't exist yet because there is still lots of research to do concerning long term effects of prosthesis. This is true, and the medical ethics of using patients with injuries that can be helped by neural prosthesis for research into neural prosthesis is clear. The injured seeking a return of function are considered to be the correct, ethical, and most generalizable population to use for testing cybernetics (such as they are). This research, as far as I can tell, is limited to prostheses for arms and legs, and there are some efforts going into eyes and ears, and even some neat research showing that you can use a patch of skin on someone's back or tongue to give them a new perception channel by having a machine translate signals like ultrasound into an interpretable sensation. My question is less about the extreme body modifications of amputation (and others), and more about transdermal implants. You've likely seen articles about "telepathic computer interfaces", where the subject is wearing an electrode net to pick up on scalp capacitance and inductance, allowing people to learn to move a pointer on a screen by thought. One of the reasons this application hasn't become very popular is how much of a pain in the ass it is to get an electrode net on. There is gooey crap, the electrodes need to be in the correct place, and you need to try not to dislodge them. This is not something Jane Q Public will want to put on in the morning, or ever. This can be solved (my hypothesis) by implanting electrodes and magnets under the skin as the base for the transdermal piercing. This allows the electrode net to snap into place, and has the added benefit of allowing the system to cancel out the electromagnetic signals on the scalp (the usual target), and get cleaner signals from deeper into the brain. However, I can't do this, as it jumps the borderline between "piercing" and "surgery" at the point that you adding an electromagnetic oscillator under someones scalp. A quick disclaimer: I'm not planning on doing any of this. This is an academic question, not an "academic (*wink, *nudge)" question.@-rep +1
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]root@Medical ethics and cybernetics
[hr] Does anybody here on the forums know Kevin Warwick? I see he worked at Oxford for at least a while. Anyway, if anyone does, tell him I am available to work if he would have me. Yes, the spikes he has on demonstrate the type of piercing I want to use. The problem comes in when I'm using that piercing to implant an active electromagnet under the skin over either occipital lobe.@-rep +1
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]root@Medical ethics and cybernetics
[hr] I have heard it said by people I respect, that if you have to think about whether an action is ethical or not, you probably shouldn't be doing it. I respect this, but I can't seem to do it. I have to play with it and see where the edge is (a trait which annoys the hell out of everyone I know), but once I've learned the edge I try to figure out how far back need to step before people stop looking at me like I sprouted a third ear. To formalize my stepping back, let's look at the subset of piercings that don't count as body-modding. I know that pierced ears are generally considered acceptable, but I know it is only a generality because my family was displeased with my choices when I got one. A few years later, they were very disappointed when I punched a hole in my tongue. The young whippersnappers these days seem to have things mounted on their skin (or eyes), so I guess my experience was an outlier. So now my question becomes "what is the limit of acceptable piercings?"@-rep +1
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root@Medical ethics and cybernetics
[hr] Yea, that seems like a worse case scenario. I'm not planning on getting any body modification, and my psychiatrist finds my project interesting and amusing, so I'm probably pretty ok as far as that is concerned. The problem is that I can't just go ahead and do whatever I want, because I do not possess the resources to complete my project without institutional support, and that relies upon an IRB's approval. The reason that I started out by discussing the heavy body modification crowd isn't because my project involves that heavy of a modification, but because I'm exploring the ethics involved, and that requires finding the extremes. I am now looking at acceptable piercings to see what society considers acceptable and normal to see if my project actually falls outside of acceptable or not. If it is fully acceptable, I'm golden, but if not, I need to be able to fully defend the ethics to a board of experts responsible for making sure my project doesn't get an entire universities research shut down. I may think my idea is neat, but in no way does it balance against an entire universities research, so I'd rather play it safe. Also, people look at me weird when I start talking about things that are borderline ethical, so I'd like to not be near that border. I am being coy about my project, yes, and I also lied earlier when I said this was entirely academic. I'm a monster like that, I guess. This is mostly because I'm not done designing it, and having the design reviewed by people who know better than me for functionality. I hope to talk with some experts in the next few days to see if what I've come up with is actually feasible, or just some crack-pot idea every other slightly crazy futurist has tried to make. I am also excited about it, and worried that I am overblowing the potential effects it can have, as my experience in the world of product development is currently null. But if the design works, and the ethics are sound, I will post about it, as I feel I owe it to this community. I am pretty certain that I never would have thought it up if it weren't for spending my summer here chatting about transhumanism, and people here may be the most likely to appreciate it.@-rep +1
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[hr] I just finished explaining my concept to my family. That was...unpleasant. I wasn't able to find my subject expert today, so I just kept up my literature review, and I'm growing more convinced that this will work. Even though I'm pretty sure it will work the way I want it to, that conversation with my family makes me think I should be more worried about an IRB. Hell, I shouldn't be worrying about the IRB yet, as I still have to convince a professor to accept it and go champion it to the hospital. Conservative is a word without enough force to describe he hospital, and I need to convince the hospital to allow a surgeon to work on this before I can even try to convince the IRB. I think I might be well and truly fucked. Here's another ethics question that is welling up from frustration and anger. If I am denied by all of institutions here, is it ethically unacceptable for me to just dump the concept design on the wide internets? That effectively means the body modification crowd would be the ones testing it out on themselves, without the benefit of clean surgery, and with no oversight or validated data. That's probably not ok, is it?@-rep +1
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[hr] It is unlikely, but it happens to be true in this case. I have an unusual set of knowledge, even if I can't claim to be an expert in anything. I'll out myself a bit and tell you that I am an undergraduate engineering student with a previous degree in cognitive psychology. While this isn't the rarest knowledge set in the world, it is locally unique to myself and my lab partner. It is also quite possible that the idea isn't as easy as I think, that I am simply wrong, arrogant, and delusional. This would not surprise me, and wouldn't be the first time one of my ideas was flaky bullshit. Delusions of grandeur seems to be a danger that comes with being half-trained in every subject I possess.@-rep +1
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[hr] The warning about overestimating the ease of implementation is sound, and has stopped a number of my ideas in the past. With this one, I don't expect to be able to do it next week, but I'm hoping to use it for my senior project. I have a year before I'm even supposed to start on that, but I think I'll need the extra time to deal with things like an IRB that are not normally something an engineering student has to worry about. The magnetic vision implant, and their difficulty finding a surgeon to perform it, is why I am expecting a great deal of static on this project. Materials, implants, and implanting are things I think my research has covered, but I'm not quite so silly as to trust my own efforts without running them past experts. As far as ethicists, I sort of thought I was consulting one.@-rep +1
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root@Medical ethics and cybernetics
[hr] If it were merely an idea I didn't have good backing for, releasing it to the internet would be a good way of getting feedback on the parts that violated physics, or weren't viable. I won't mind sharing it once safety considerations are researched, but throwing an idea out that involves risk, without knowing what those risks are, is not something I can do. And the body-mod people do not stop just because its risky. NSFW.@-rep +1
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root@Medical ethics and cybernetics
[hr] Ok, I finally got a good idea of what it takes to make use of this little idea of mine. There is enough electronics involved that I think the difficulty of making one is high enough that no one can do so casually. I'm still leery of slapping it out here before checking it with someone with some experience in the field, but I'll send information on it over a private channel if a certain cyberethicist wants to set one up and is interested.@-rep +1
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[hr] That's very kind of you, but unfortunately it wouldn't do me any good. Even if I got in touch of him, and via some cosmic miracle he was interested in having me as a graduate student, and even if the admissions board at Reading University was somehow all struck with a temporary and specific visual defect for long enough to not notice my GPA, I am still unable to afford the £12.500 per year to attend. Of course, if you multiplied the £12.500 by the probability of the two conditions being true, then I could afford it since the cost would be rapidly approaching zero.@-rep +1
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[hr] For anyone interested in an update, my idea has made it past the first stage: no one laughed in my face when I presented it. Admittedly, I my sample size has a very small n, so my confidence interval is very wide on whether or not this is due merely to the chance that everyone I have spoken with is incredibly polite. Anyway, I'm now trying to filter it through a safety check, and I'm glad I did. The danger isn't high, but since I am not an engineer (and won't be for a bare-minimum of 5 more years) I didn't even think it existed before someone pointed out that the power supply was enough to cause, ah, problems. And since it has been explained to me in great and graphic detail that "For Science!" is not an acceptable alternative to "basic safety from horrible burning death" (thanks a bunch, you spoilsport lawyers), I need to make sure there aren't any wee problems like that before I turn it over to all the nutters out there who might decide to use it. I'm such a tease, I know, but in my defense, an excited half-informed engineering student has been able to push the envelope on an exciting branch of science back a whole 20 years more than once in the past. While I don't think I have the sheer charisma and blatant disregard for fact needed to jump a field back 20 years, I do believe in my ability to make such an ass of myself with a half-baked idea that I set myself back that long. [hr] [EDIT] I found a better explanation for my reticence: "Fundamental Canons of the American Society of Civil Engineers (ASCE)@-rep +1
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